Autism Cuppa

Hello, Is this the party to whom I am speaking?

It’s been busy around here. The usual holiday stuff on steroids since I have a profession which is busy, very busy, around this time naturally.

Kiddo is excited once we put up Christmas wreaths, so he’s giggling and happyhappyhappy which is never a bad thing.  We always wait to put up our tree until a few days before Christmas simply to keep Kiddo from *arranging* ornaments the livelong day but do  other festooning in December.

Anyway, I’m really writing to complain today about Medicaid.  Mostly, Kiddo is very healthy other than his food triggered migraines… meds (except pain meds if he has the occasional  migraine triggered by light or he sneaks a food he shouldn’t have) and has a yearly flu shot from the pharmacy we’ve been taking him to for ten or so years.  His Medicaid primary care doc changes at least once a year so we avoid going to whoever that is unless we absolutely have to because it gets tiring having to explain autism (yep!) over and over again.

Last week as I getting ready to leave for a business meeting, Medicaid called and wanted to speak with Kiddo. I explained he couldn’t speak with them because he is non-verbal and I was his co-guardian and it should be in his file since we have faxed, emailed and written this fact with the corroborating papers  to them from the first time he applied for Medicaid.  She asked me what I meant by NON-VERBAL and she didn’t have his file in front of her.  I told her that means he can’t talk and it should be in his file and if she really needed to speak with someone about Kiddo, she should look up his file.  She countered with “can’t talk or won’t talk”…..I explained he has autism and he is not able to speak. She countered with “has he ever had speak (yep, *speak therapy*) therapy?”…..I explained he began speech therapy at the age of 27 months.  Then she accused me of not letting her speak with Kiddo and hung up.  I figured someone else would call again if they really needed information but as I was putting on my coat, this person called again and left a message on the machine, wanting to speak with Kiddo and only Kiddo, explaining they want to do a health screening for diabetes.  There is nothing to point to diabetes for Kiddo…he’s about as healthy as healthy can be……anyway, I will wait for a call from someone with his file in front of them.  I hate being treated this way since it takes away from what the focus should be and that’s My Kiddo!

And this, Kids, is one of the frustrating parts of parenting an adult with autism!


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Your Autism Cuppa is written by a longtime Autism Mom. A former Autism Society of America local chapter president, she is an educator and artist and has done inclusion consulting work for over 20 years. Married for 36 years to the father of her Three Sons, the eldest having autism, she wants young parents to know they are not alone. Life can be fun!

4 thoughts on “Hello, Is this the party to whom I am speaking?”

    1. It’s happened before with us, too. Usually, when I explain he has autism, he’s non-verbal etc. etc. they get it. This woman somehow believed I was keeping Kiddo away from answering her questions for my own nefarious reasons (the mind boggles what those could be!) and would not take my word for it he would not be able to talk to her. I was arguing with someone who didn’t seem to grasp the dx of autism and THAT’S what ticked me off. Hubby told me to use the *R* word….which I hate to do. But maybe I should have 😦

      Liked by 1 person

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